Adaptação transcultural de instrumentos de medida do cuidado centrado na família / Cross-cultural adaptation of an instrument to measure the family-centered care

Realizar a adaptação transcultural para a língua portuguesa brasileira de dois instrumentos de medida do cuidado centrado na família, um para pais e outro para profissionais da equipe de saúde. Métodos Estudo metodológico de adaptação transcultural seguindo as etapas de tradução, retrotradução, análise de especialistas, pré-teste, teste-reteste e análise psicométrica após aplicação do instrumento com 100 pais de crianças hospitalizadas e 100 profissionais de unidades pediátricas de um hospital universitário. Resultados A avaliação por especialistas de ambos os instrumentos apresentaram Kappa de 0,85 e 0,93 respectivamente. No pré-teste, os participantes não sugeriram alterações. No teste-reteste houve bons índices de estabilidade em ambos. A análise fatorial explicou 43,9% da variância total no instrumento pais e 43,4% no instrumento equipe. O coeficiente Alpha de Cronbach foi 0,723 no instrumento pais e 0,781 no instrumento equipe. Conclusão Os instrumentos adaptados para a cultura brasileira apresentaram confiabilidade, estabilidade e boa consistência interna com potencial para ser utilizado na pratica clinica pediátrica...

To assess the cross-cultural adaptation to Brazilian Portuguese of two instruments for the measurement of family-centered care, one for parents and one for healthcare professionals. Methods Methodological study of cross-cultural adaptation following the phases of translation, back-translation, analysis by experts, pre-test, test-retest and psychometric analysis after the application of the instrument to 100 parents of hospitalized children and 100 professionals from pediatric units of a teaching hospital. Results The evaluation of experts in both instruments showed a Kappa of 0.85 and 0.93 respectively. At pretest, participants suggested no changes. Test-retest reliability was good for both stability indexes. Factor analysis explained 43.9% of the total variance in the parents instrument and 43.4% in the staff instrument. Cronbach's alpha coefficient was 0.723 for the parents instrument and 0.781 for the staff instrument. Conclusion The instruments adapted to the Brazilian culture presented reliability, stability and good internal consistency, with potential to be used in the pediatric clinical practice...

We have needes, too: parenteral needs during a child's hospitalisation

The influence of demographic characteristics on the perceived needs of parents in a sample of staff and parents of admitted children in a paediatric hospital in Sweden were examined as part of a project in Sweden, England, Indonesia and Australia. Over 100 parents and 100 staff responded and responses compared, including perceived importance of each of the 51 needs. Few needs were influenced by demography of either staff or parents, except for a) to meet other parents of a child with a similar condition; b) not to feel blamed for a child's illness, and c) to have access to a social worker. The influencing characteristics were a) whether the responding parent was the child's mother or father, b) their education level, and c) if staff held specialist paediatric qualifications. For nine needs all parents and staff agreed that they were important. These findings provide ways to enhance communication between parents and staff and provide evidence about the effects of hospitalisation on children.